Write for Awareness (Part 2)

The following poem is by Maria Pia Dell’Omo. She has written it in Italian and translated to English.

And now the original Italian version

Write for Awareness.

A few of our support group members have written some poems for awareness.

Fire, by Allison Ramirez

There is a fire burning inside of me

A fire that no one else can see

An ornery persistent smouldering burn

Takes away the peace for which I yearn

There is a fire burning inside of me

A fire no one else can see

Burns through me in every way

Burns through each and every day

This fire that burns inside of me

This fire that only I can see

It sets my nerves aflame

Leaves me moaning in pain

This fire that burns inside of me

This fire that only I can see

What chaos this burn does foment

It makes my life a living torment

This burning flame inside of me

This burning no one else can see

Turns my pain into passion

To beat this pain into submission

There is a fire inside of me

A fire that shines so you can see

This burning pain has had to fashion

A life of strength and compassion

This fire that burns inside of me

This fire that I hope you can see

From tears and pain like lashes

Like a phoenix I rise from the ashes

Clothed in the fire that burns inside of me

Burning so everyone can see

Is a person nurtured and forged in pain

Transformed into something new again

There is a fire burning inside of me

A fire that burns for all to see

A fire that burns away the pain

A fire that gives me my life again

A fire of strength and compassion

A fire for life, love, and passion

Allison Ramirez

03/09/2014

A Christmas Wish

Life

I have a life

It was given to me

A precious gift

A world to see

The pain has come

It was given to me

A moment in time 

Taken from me

A feeling of fear

It was given to me

Nowhere to turn

Take it from me

Please give me an answer

Please give it to me

I want the life

That was given to me

By Anita Springer

✦✦✦

A Kiss

How can such a gentle touch
A kiss
A sweet caress
Become such pain

Once I welcomed the feel
Of my lovers's hand
His lips upon mine
The gentle closeness of love

Pain has taken the place
Of the joy
Of the unexpected kiss
The gentle caress of my face

Inwardly I cringe in fear
Hoping he doesn't see
The dread I hide
When he comes near

Will his touch cause me pain
Will his kisses sear
Send burning waves
Shocking stabs
Stinging zaps
Across my face

The unseen cost
Of love and affection
The fear
The dread
The inconsolable sadness
Of what I have lost
Is the pain I hide
by Allison Ramirez

Living With Trigeminal Neuralgia Can Bring Out The Creative Side

As the title says, we often see people writing poetry, prose, drawing  or painting. They make jewellery, they make cards, they just get creative.

Maybe it's a way of taking their minds off the pain. Maybe it's therapy to them. But whatever the reason, we feel it is too good not to be shared. So today, we have a couple of poems for you.

"Sitting Here"

Sitting here with my head in my hands,

The pain is so intense I can't even stand,

TN is my worst enemy, its never a friend

I wish I had a magic wand

To make this pain end, 

But I am a survivor and 

I will fight my way through,

The pills and the pain

I swear I will beat you...

You may be my enemy, but

You will not beat me, it will not be the end

As I gain all my strength from my

Family and friends

By Nicola MacKenzie

❊❊❊

"Waking Up"

I wake each morning not knowing what the day will bring.

Will the pain be low or debilitating?

Will I be able to do all the things that Mommy's do

or fight horrific pain the whole day through?

Will today be the day that I am pain free

or just another day in misery?

I'm so sick of pain controlling my life and

affecting my ability to be the very best mommy and Wife. 

I'm sick of not being able to enjoy this life

that God has given me this second chance at.

I'm sick of the doctors saying I now have this or that!

But we all have to fight even when we are weak.

Take the worry out of our loved ones eyes when they kiss our cheek.

This disease won't break us no matter how much it tries. 

Just you wait and see, Some day a thing of that past will be our painful cries. 

We may be down right now and feeling like we just cant take no more of this pain

and having to live this way.

Our pain free days are coming. God is listening when we pray.

By Dawn Gravitt Earwood

❊❊❊

So does living with pain bring out your creative side?

If it does, please let us know.

The Trigeminal Nerve - A Positive Version

Last week we wrote about the horrible aspects of trigeminal nerve. We ended it by saying, can anything in life be more hated. Possibly some things in life can be more hated….but we all know it's pretty horrible.

However, sometimes, when we come up against something bad, we have to look for something positive to take from it. Sometimes we need to look really hard, but there is often something positive there.

This is a more positive version of The Trigeminal Nerve.

© 2013 End Trigeminal Neuralgia

Got That Monday Feeling?

Monday

Today it is Monday

You wonder how I know

Ah, quite simple really

The computer told me so

© 2013 End Trigeminal Neuralgia

Where would I be without it

I can’t begin to guess

Because, to put it quite bluntly

My head is in a mess

The memory’s not so good now

And words just don’t come out

Everything I start to say

I quickly start to doubt

I think my brain stopped connecting

With my lips and fingers too

Spellcheck has made this readable

Or else you wouldn’t have clue!

My fingers do their own thing

And seem to dance around those keys

I type Rs instead of Ws

And mix my Gs with Bs

Is it because I’m getting older?

Or is it just my meds?

I think it’s the second option

They do this to our heads

E.S.