Trigeminal Neuralgia is such a cruel condition. It needs more awareness and we believe that together, with your help, we can achieve that.
Please help by sharing our blog, and following and sharing posts from our Facebook page. Every little helps. If one more person understands about TN, then you have made a difference.
They are our ambassadors for Trigeminal Neuralgia Awareness Day, on 7th October. They want to help raise awareness of what it is like to live with TN.
With your help, Tina and Tony will trend on social media, which will ensure more people learn about TN.
Please help us introduce them to the world by sharing their posts across all social media. Include the hashtags #MeetTina and #MeetTony and #TrigeminalNeuralgia
Each Tina and Tony posts highlights a different aspect of the way TN impacts daily life.
Trigeminal Neuralgia Awareness Day is just around the corner.
On the End TN awareness page, we have just finished a series titled "TN Experiences". Some of our members wrote a short piece about their experience of living with trigeminal neuralgia. The album can be found here. This series shows more than ever, how much awareness is needed.
By sharing these stories, really explaining what life can be like, we hope that people might understand more.
There are pics with short explanations of TN and some which can be used as profile pics on social media sites.
Profile Frames
On Facebook, we have some frames which can be used. Click here then click 'Try it' or 'use this frame' and you will find several options.
And if you want a frame for another social media site, we have a frame over on Twibbon
Banners
We have various sizes, so some are perfect for banners and header pics. These can be downloaded and are free to be used.
A Little Bit of Light Relief
Awareness is all about showing the harsh realities of living with facial pain. But we don't want to be bogged down with depressing posts all the time.
If you fancy a wee bit of fun, have a go at our maths puzzle here.
Awareness every day...
Awareness should never be reserved for just one day or even one month of the year...we need it every day. Our posts, files, videos etc are always available to share.
Awareness is so important. When we share posts for awareness, it's important to get the message across. This poster explains exactly what Trigeminal Neuralgia is. We have more posts like this on our awareness page. They can be found here. Please share what you can.
For a list of all our files, posters and videos, please take a look at our index
How many people do you know who have an invisible condition? If they don't tell you, how would you know? It's invisible. So, could be many more than you realise. Very many more.
We never know what goesver know what goes on behind a happy, smiling face.
People living with a physical or mental health problem which cannot be seen look fine. They look healthy. But in actual fact, they are living with something which may be quite horrendous. Something frightening. Something painful. Something which has a huge impact on their life. But....they look fine.
Their disability is already bad enough, without having to then deal with obstacles and prejudice.
The world needs to learn to see beyond disabilities. But it also needs to learn to see beyond the invisibility of some disabilities.
We never know what goes on behind closed doors. Likewise, we never know what goes on behind a happy, smiling face.
People with invisible disabilaties often get criticised when using disabled parking areas. "They shouldn't be using that space. Look at them. They look healthier than me!" But the truth is that they have been granted the disabled parking badge, because they have a disability. A doctor has signed off on it, and the person has paid for it. Looking fine doesn't mean being fine. They need that space close to where they are going for a reason. Do they need to have notes left on their cars saying they have no right to the space? Or strangers approaching them demanding they move their cars? No, but this is often the reality for the invisibly disabled. It is difficult enough dealing with the disability itself, without this added problem.
Another big issue is medication. Sometimes people are accused of being drug addicts. They are not. They do need to take regular medication to manage their condition. This is not a choice. Yet even pharmacists sometimes question the patient's prescription.
Trigeminal Neuralgia and other facial pain conditions are just some of the many invisible conditions. People can be living with unbearable pain, but nothing can be seen. Not even by a doctor.
We have created the following short video about Trigeminal Neuralgia, in the hope that it can possibly help bring some awareness about this extremely painful, but invisible, condition.
Invisible illness week
This is invisible illness week (28th September - 4th October). End TN has joined with many other groups for other invisible conditions to try to get more awareness for the many conditions which cannot be seen.
We want to make the invisible visible.
We can make a difference, but we need your help.
Please share blog posts, videos and posters about invisible conditions, using the following hashtags when you post: #MyInvisibleFight #iiwk2015 #Invisibleillness along with the name of the condition which you or someone you know lives with.
