The Jigsaw Puzzle Of Life
It could be your own illness, your spouse's, your child's or your parent's. Each affects your daily and weekly plans differently. But each impacts and squeezes your carefully arranged puzzle piece life where everything just about fits together perfectly (on a good day!). Whether it is staying home from work to nurse your child through an ear infection,adding in a visit to your aging parent every day in a nursing home or accompanying your spouse to endless doctor's visits and treatments. Somehow your bit piece life expands to allow these extra parts to fit in.
What happens when the jigsaw pieces have been thrown in the air and some land upside down or on the floor ?
What happens when a piece is broken or lost forever?
How do you begin to piece the picture back together? Repair the broken pieces, substitute the missing ones?
How do you find the energy to pick up the pieces, examine them again and start over?
Trigeminal neuralgia forced us to rearrange our puzzle. As I described it back in November last year in Brainstorming-Fri Nov 4 2011)
We are finding our way back into making long term plans. It has been a while since we have made them and there is a volatility about living with facial pain that we are learning to manage and adapt to. So in the meantime I ask my friends on the spur of the moment to come for lunch, go for a walk, watch a movie, have a cup of tea and they have generously learned to be spontaneous with me.
I walk in beautiful gardens (Brookside Gardens is a favorite.) I plant flowers, lots of them, everywhere.Their life force, beauty and color and pattern lift up my soul and remind me of birth, growth and resilience in this uncertain world. (You may enjoy reading Rabbit Wars and Among The Weeds)
I take deep, slow, rejuvenating breaths, that calm and soothe.
I have the name of the neurologist on speed dial. I text him and he calls us back. He cares that our life's jigsaw should not be so interrupted and provides encouragement and solutions that shape and mold the puzzle pieces back into place.
I pray, hard, often, with others and by myself. I talk to G-d and whoever guides me. I ask for help and insight and courage and wisdom and sometimes when I am listening carefully an answer comes to me as a whisper in my heart.
If you would like to read more from Gilly's blog, you can find it here www.gillycannon.blogspot.com
If you are a carer for someone with Trigeminal Neuralgia, or another horrible condition, how do you cope? If you would like to leave a comment below, please do. Or you can contact us at our Awareness Page on Facebook.