Monday, 7 October 2013

Awareness Day

It’s Time

Time for the world to unite
There are no oceans to divide us
We are united in pain

It’s time to put our voices together
It’s time to be heard
It’s time to END Trigeminal Neuralgia

So the 7th of October is upon us. Today sees the first ever International Trigeminal Neuralgia Awareness Day. For the first time ever, so many voices are speaking out about Trigeminal Neuralgia. Teal ribbons are being worn. Buildings and bridges are being lit in teal. Television news are broadcasting about TN. Newspapers are publishing stories about it.

People who suffer from TN, who struggle through life every day, are working so that others will take notice of this condition which blights so many lives. People who struggle to talk at times, struggle to eat, even struggle to get out of bed some days have become so passionate about raising awareness. And it is so good to see so many people trying so hard.

But it can’t stop here.

The 7th of October is just one day.

We have to continue with awareness every day until things change. Until the day when people stop screwing their faces up at the mention of Trigeminal Neuralgia, because they have never heard of it. Until the day when people immediately understand and show empathy and concern. Until the day when a sufferer walks into the doctor’s office because of their pain and the doctor immediately recognizes it as Trigeminal Neuralgia and treats them appropriately.

And until the day there is a cure. A real cure.

Until that day, End TN will continue to raise awareness about Trigeminal Neuralgia and will try to help fellow sufferers. Hopefully everyone will continue to do that along with us.

Sunday, 6 October 2013

I have a life
It was given to me
A precious gift
A world to see

The pain has come
It was given to me
A moment in time 
Taken from me

A feeling of fear
It was given to me
Nowhere to turn
Take it from me

Please give me an answer
Please give it to me
I want the life
That was given to me
By Anita Springer


A Kiss

How can such a gentle touch
A kiss
A sweet caress
Become such pain

Once I welcomed the feel
Of my lovers's hand
His lips upon mine
The gentle closeness of love

Pain has taken the place
Of the joy
Of the unexpected kiss
The gentle caress of my face

Inwardly I cringe in fear
Hoping he doesn't see
The dread I hide
When he comes near

Will his touch cause me pain
Will his kisses sear
Send burning waves
Shocking stabs
Stinging zaps
Across my face

The unseen cost
Of love and affection
The fear
The dread
The inconsolable sadness
Of what I have lost
Is the pain I hide
by Allison Ramirez