Thankfully many people with Trigeminal Neuralgia do have loving and caring families and understanding friends.
However, sadly, for some people, that support is not there. It possibly was there in the beginning of their journey with TN, but gradually (in some cases, fairly quickly) people backed away, leaving them to cope on their own.
Support groups become crucial for those people. Especially online support groups. To know that they can have people to talk to at the click of a button is so important. People to listen to their worries. People to cry to. People who understand. People. Just people.
But it is still never the same as having the person sitting next to you hold your hand when the pain gets bad.
So what happens to those who don’t stay. Why do they leave? Can they not take the stress? Can they not face watching the person they care about in pain. Or do they simply want an easier life. Perhaps that is a question we will never know the answer to.
Perhaps those giving the support also need support.
Life is hard.
Life with Trigeminal Neuralgia is harder.
So to all those who are there, who stay through thick and thin, through all the pain, we cannot thank you enough.