Wednesday 17 July 2013

Treating Trigeminal Neuralgia Pain……… One Size Doesn't Fit All!


If only treating Trigeminal Neuralgia was as simple as going into a shop and buying a new tee shirt.....one size fits all. No need to try it on. It will fit. Says so on the label.

No, Trigeminal Neuralgia isn’t that simple. Doctors prescribe a drug at a certain dose, then increase it, then keep increasing it. Then the doctor will add another med into the mix. Then increase it, then keep increasing it. Still in pain? Ok, let’s try this med as well, or sometimes instead of. If it’s instead of, then you need to come off those others and start from scratch. 

It can go on and on and on. And people can often still be in pain. No matter how good the doctor is, no matter how knowledgeable the doctor is about TN, the same thing can happen. It’s not the doctor’s fault. It is Trigeminal Neuralgia’s fault. It is just so difficult to treat.

Many people go for a long time before a proper diagnosis, so then it is even worse. They have often already been through every over the counter med that you can buy in a pharmacy. Then GPs start trying stronger analgesics. They don’t help either, so eventually the the correct TN meds get prescribed. Those are normally epilepsy meds and some anti-depressants. But just because they are the correct meds, doesn’t mean they will work for everyone.


It is all very trial and error. Every med works differently for every patient. Some don’t work at all for some patients. And some cause a bad allergic reaction for some people. And what makes meds even more confusing for patients is that each drug has at least two different names.

But...with patience and understanding doctors, the right drug or combination of drugs can sometimes be found. It might not always be perfect. There might still be some pain, but if it is better than before, then it is good.

And if meds really don’t help, then there are some surgeries and other treatments. Again.....there is no one size fits all. If only...

Even with home remedies, it is the same story. What helps one person, may not help another. Everyone is different. We have a file on our Facebook page with some self help tips which have given some people a bit of relief. Obviously, we can’t guarantee that any will work with any individual’s pain, but it may be worth taking a look. It’s HERE

Hopefully one day, they will come up with something which does suit everyone.




6 comments:

  1. I hope you don't mind me saying - this isn't a criticism - but pregabalin is spelt wrongly on the T shirt.

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  2. Thank you…..I don't mind at all. I will change it.

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  3. Hi I am new to TN. But, it is just painful.I Thank you for making me feel. That i am not alone.

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    Replies
    1. Hi there, you are definitely not alone. There are, sadly, many TN sufferers in the world.

      Do you use Facebook? We have an awareness page there and a support group. You will be very welcome to join.

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  4. hOLA am from Bolivia, José Carlos CALL ME, I WANT TO SEND YOU GREETINGS IN FACEBOOK FRIENDS HAVE FOUND A GROUP OF SIMILAR TO HELP YOU BUT IN SPANISH, MANY THANKS FOR HELP.

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  5. I have horrible itching from the hydro codone (Vicodin) that was prescribed and if I'm honest with myself it doesn't really touch the pain anymore. What is everyone else using for pain relief? Anything with less itchy side effects?

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Thank you for your comments.